#1 Products in my tool box (AMAZON friendly)

Below are products I keep in what I refer to as my "toolbox" of non-medical aids that aid in supporting symptoms accompanying my multitude of conditions- if you click on the image it should bring you directly to the link (all Amazon) with a small description of what i use each item for-Reach out with questions!


Migraine relief, use on neck, temples, and occipital nerves. Also helps aid in Inflammatory arthritis flares

Migraines - an Ice cap with pressure points
Migraines- acupressure
Cyclic Vomiting / IBD/ Endo Instant ice packs for the moments you feel like fainting (Keep in the bathroom)
Bruising/Wound/Scar healing (post IV healing usually for me/ on my stomach where blood thinning injections go.
 
CVS/Endo/IBD, Aids in digestion, regularity, helps sleep enhancement
Digestion, regularity, sleep enhancement 
Endometriosis-Rechargeable portable hot pack
Restless legs, general aches/pains, sleep enhancement
Raynaud's savior- Rechargeable hand warmers  
Raynaud's savor in the bathroom in the winter!
hEDS/Inflammatory Arthritis - helps avoid subluxations while sleeping
Migraines/ Flair days, if your curtains are cute but not blackout
Make your life easier fill your meds on the first of the month and you never miss a day!
EVERYONE SHOULD OWN ONE! But great for Endometriosis, IBD
 Cyclic Vomiting
Cyclic Vomiting episodes-the over heating phase
Migraines, Cap without pressure points

POTs/hEDS/DVT prevention, healthy Electrolytes with minimal sugar 

Gastroparesis/ Digestion aid (any greens but these are the ones i have found to taste best)
CVS/POTs - High protein with good ingredients-safe food for me.

POTs/CVS/ hEDS good tools for helping determine when the ER is necessary

 

CVS/hEDS digestion aid/ nutritional supplement

Comments

Post a Comment

Popular posts from this blog

So what is wrong with you anyways? Feat. The Roster

I remember it all too well, it was rare I was there- Feat. "The Roster" I never thought I would reach that level of comfort to put my raw self out there like this, But this is what weeks to even months can look like for me, navigating and dealing with the multitude of chronic conditions during a flare from one more of my multitude of diagnoses. I feel unreliable as a friend and as a worker. I live in fear that I will wake up and feel sick which will ruin my whole day...work, weddings, vacations, giving my dog attention...which to be quite frank, likely triggers some of my flares. What triggers flares? Stress. I don't want to date because I don't want to share this horrific part of my life. I am a big fake it till you make it advocate...for a long time I didn't think I was "sick enough" to talk about it on the internet, but in my most recent hospitalization lasting almost 2 months, there's no such thing as sick enough. My quality of life is not what i...
Read more

Cyclic Vomiting Syndrome ...the worst of all

Image
 The biggest beast of them all. Cyclic Vomiting Syndrome (CVS) Picture this...its 3 am and you pop up in excruciating pain and actually know you're about to endure the most exhausting days of your life as soon as the first vomit happens. It's unique, I can feel the difference when vomiting if it will be an episode or if it is not an episode and just one of my body's many comorbidities acting up. The above table is a great breakdown of the phases but it is simply a break down...the video below which I will credit was from the NORD site is a great explanation of the episodes them self.  Though it does not get into the pain of the retching when there is nothing left or the fear of the wait time before receiving any relief due to stigmas in the ER and common misconceptions of those doctors who don't take the time to review your history. It is for this reason that I recommend that anyone in my shoes, makes a medical binder . More on that later; check out the video I found b...
Read more

Age 6...

Growing up, I faced the world with a mix of clumsiness and resilience. My mom, convinced I was just accident-prone—especially after two back-to-back broken arms—decided to enroll me in karate. She hoped it would improve my self-awareness and balance. Ironically, I never got hurt in karate; instead, it taught me grace, tenacity, and the ability to carry the weight of my struggles. At just 7 or 8 years old, during a visit to UMass Children's Orthopedics, I first heard the term "Ehlers-Danlos Syndrome." Tragically, that was also the last time it was mentioned. Despite my myriad health challenges growing up, no doctor connected the dots. It wasn’t until 2019, during a desperate search for answers as my health rapidly declined, that I revisited this diagnosis. Although it was brought up occasionally, I believed it only affected my joints and mobility. What I didn’t realize was that hypermobile Ehlers-Danlos Syndrome (hEDS) is a connective tissue disorder that impacts the entir...
Read more